Recruitment, retention, and intervention adherence for a chronic illness self-management intervention with the Apsáalooke Nation

Laurel Fimbel

Montana State University

Mikayla Pitts

Montana State University, Department of Health and Human Development, Bozeman, Montana

Dr. Mark Schure

Montana State University, Department of Health and Human Development, Bozeman, Montana

Alma Knows His Gun McCormick

Messengers for Health, Crow Agency, Montana

Dr. Suzanne Held

Montana State University, Department of Health and Human Development, Bozeman, Montana


Abstract

Recruitment, retention, and adherence within health intervention research have been understudied in Indigenous communities, where well-known health disparities exist. The purpose of this paper is to describe planned versus actual recruitment, retention, and adherence strategies and the evaluation of retention and adherence strategies for a community-based research study of a Chronic Illness (CI) self-management intervention within an Indigenous community. A Community-Based Participatory Research (CBPR) approach was used to develop and implement Báa nnilah, a culturally consonant educational intervention to improve CI self-management.  Reasons for participant adherence and retention were tracked and recorded over time. A post-intervention survey assessed barriers and facilitators to intervention adherence. Overall, recruitment, retention, and adherence methods were successful in enrolling and maintaining participation. Using a CBPR approach and culturally consonant strategies may assist in meeting recruitment goals and improving sustained participation of community members, thus impacting health disparities among Indigenous communities.